Monday, August 14, 2006

1974-? What is really in my dash?

I hope this finds everyone doing well. I am excited for this is my first blog! I give all the credit for the tagline to this blog to my friend Parisjasmal. She was the person who not only put the idea of doing a blog in my head but she thought of the most perfect name very quickly. She thinks quick on her feet (maybe that is my problem!) Many hugs to you. Thank you very much. Check her out at http://monkeyposh.blogspot.com/. She cracks me up!!!

Hi, you may call me Miss S! Many of you have probably heard the story and meaning behind the dash. For those of you who have not, the dash represents who you are and what you were in this world. When you're gone and have moved on what’s in your dash that is what you are remembered for. Sharing what is in my dash so far is something I have wanted to do for quite some time. I wanted to write about my emotional feelings and actions during my 30+ years of living with Friedreich's Ataxia (FA). A rare, genetic, and slowly progressive nerve disorder that I was diagnosed with at the age of 12. It affects my balance, coordination, fine motor skills, and muscle strength. It is also a form of Muscular Dystrophy (MD). FA does not define who I am by any means, but it has been a huge obstacle in my way that continues to be. For example, I was homecoming queen, have lived on my own, driven a car, got a college degree, had several jobs, and have done many more things despite my disability that I will all share with you about in detail later. I am not a doctor so medical advice is not my forte. You can do anything you put your mind to. The mind is such a powerful tool. I also wanted to share about my life to give others with FA someone they could relate to. Since FA is rare, it is not common to know others with similarities. It was 4 years before I met someone with FA, and the instant bond we shared was indescribable. Throughout my life these are some of the most important lessons I have learned: Laughter is the best medicine, not to sweat the small things, and not to feel bad in asking for help when needed. Your attitude means everything. I am not claiming to be a cheery person all the time. I have my moments like everyone else including those "why me" moments from time to time. When I get frustrated with things I tend to cuss, clean, scream into a pillow, workout, listen to music, or write. Geez, that sounds like I get frustrated a lot! Not every time I do those things am I frustrated (especially when I scream into a pillow, LOL!) at myself. Like the saying goes, there is no use in crying over spilled milk! Laughter is the best medicine, and I am the first person to laugh at myself. That is how I keep my sanity. If I stayed frustrated at myself for all my actions that are beyond my control I would be a miserable person. Even I wouldn't want to be around me if that was the case.

I hope you enjoy my blog entries. Do not hesitate to leave me a comment or to share something about yourself. For those of you who are interested in finding out more about FA you can go to http://www.mda.org/ or http://www.ataxia.org/.

Miss S

10 comments:

Parisjasmal said...

What an awesome intro! I think you have said everything beautifully.

I look forward to reading more of your wit and wisdom. I will put you on my blogroll--when I get one!

Thanks for the shout out!

MISS S said...

Parisjasmal,
Thankyou so much or your comments. It means alot.

Thankyou for being you!!!

Maisymoo said...

Miss S with a blog! It's perfect. I am a blog junkie, so i will check in often. You are an inspirational girl, that's for sure!

Love you!

OmegaMoo said...

Dear Thump,
You are such an amazing person! I am lucky to be related to someone as great as you. Please know that this world is better for having you in it and we could all learn something from you. No one hurts from knowing you (and that can't be said about many people ~ myself included). I think you are an Angel. I really do.
I love you,
d

ephesians1:7-8 said...

Hello beautiful!! Once again, you have brought a smile to my face and warmth to my heart. You are a blessing to so many and I praise God for you. Miss and love you!

Shanda

MISS S said...

maisy,
Thanks for checking me out. Do u have a blog? Thanks for your kind words.
Many hugs

MISS S said...

omegamoo,
you name is cracking me up, that is great! Next thing I know u will be hanging out with a tri lamb!! If we were not related our paths might have never crossed. Everything happens for a reason, your my amigo! Thank you for those sweet words, you brought tears to my eyes:)

MISS S said...

shanda,
it brings me so much joy to hear from you and thanks for checking me out.

Many hugs to you

Maisymoo said...

I think it should be noted...i am the original MOO!

MISS S said...

I agree with maisymoo. You r the original and if it wasnt for your name thumpermoo would not be.